February 12, 2014 was the day for gemciteabin with that horrible dexamethasone. The night was not as bad as the previous night of treatment on February 5th had been.
The week has generally be good with many visitors.
I have been granted a scholarship by Sunflower Wellness at the Bay Club in Corte Madera. So far, I’ve had a qi gong, a yoga class with weights, and a yoga class taught by Marcie Anderson. I loved them all, although I was unable to keep up with Marcie’s class.
On January 31, 2014, we met with Dr. Gullion. Remember, he is the oncologist who wears a heart pin on his shirt.
It was a bitter-sweet meeting, as both of us hoped I was cured.
Anyway, we discussed my situation and decided to begin treatment on February 5.
With Susan’s advice, I decided to have acupuncture with Dr. Marty Rossman each day before the chemo infusion. I am responding well to these treatments.
The first day of chemo on February 5, 2014 lasted 7.5 hours! I had cisplatin,Ã‚Â gemcitabine, and lots of anti-nausea drugs.
I spent the first hour meditating and then began the process of hydrating myself to minimize the effect of the chemotherapy agents.
I was visited by friends and even took a couple of walks around the atrium of the building.
All in all, things went quite well, except at night. Because of the dexamethasone in the drip – one of the anti-nausea drugs, I was up all night. I meditated. I wrote. I read. I did everything but sleep. Weird!
The herbs and supplements recommended by Michael Broffman arrived by special messenger (Carolyn) and I begen taking them with the kitchari Rachael had made.
On January 16 and 27, 2014, we met with Dr. Charles Ryan and his fellow, Dr. Adam Siegel.
Adam gathered a lot of information, entered it into the computer and then brought in Dr. Ryan.
At first, Dr. Ryan thought I would benefit from neoadjuvant chemotherapy and even recommend a plan. Upon further review, he decided to send my case to a tumor board to get its recommendation.
The tumor board met on January 17 and it was unanimous that I needed my bladder taken out. There were eight members on the tumor board and four of them were oncologists like Dr. Ryan. He was out of town, so the case was presented by Dr. Siegel. All four of the oncologists recommended neoadjuvant chemotherapy.
The second meeting with Dr. Ryan was challenging and took place on January 27, 2014. The chemotherapy plan suggested by the tumor board consisted of four cycles of chemotherapy, each four weeks.
Dr. Ryan corrected the plan to four cycles of chemotherapy, each three weeks. Cispltain and gemcitabine are to be administered on the first day of each cycle, along with anti-nausea medications, gemcitabine with anti-nausea drugs on the eighth day, and then a week off. Yay! I had cisplatin 17 years ago along with 5FU.
When they told me I was scheduled to start on January 30, I balked. I could not imagine fighting rush hour traffic to get to UCSF by 9:00 in the morning, have to park, and be there all day.
I suggested that I talk to Dr. Gullion about administering the treatment close to home, and they accepted my suggestion. I had already scheduled an appointment with him for January 31.
Dr. Meng is now considered the “go to guy” when it comes to radical cystectomy – the removal of the cancerous bladder and replacement with an artificial one. If you have followed my story, you know that this was the “gold standard” of bladder cancer treatment back in 1997. It still is! As Dr. Carroll once said, “[Bladder removal] is a piece of cake!”
We discussed the types of artificial bladders, but I won’t go into details. The bottom line is that I was told that I need to have a radical cystectomy. Period.
One possible option is to have neoadjuvant chemotherapy prior to the surgery. For this, we were to consult Dr. Charles Ryan on January 16.
The surgery (TURBT) took place on January 7 and I was in the hospital for three days and two nights.
On the evening of January 7, I suffered a severe pain in my left kidney. Some say it was because I didn’t let the nurses give me enough pain killer medication, but it could have happened even with it. The pain went away soon after a nurse injected some medication in my IV.
The pain has not returned and I made it through the rest of the hospital stay without incident.
It was a blessing to have Rachael prepare kitchari – an Aruyvedic composition of mung beans, rice, vegetables, and spices. Each day, she brought an new kitchari and they were all wonderful. You know how atrocious hospital food can be!
Visitors made my stay in the hospital much more comforting.
On the morning of January 9, Dr. Neuwirth came into my room and announced quite confidently, “You have muscle invasive bladder cancer and you should go see Dr. Maxwell Meng at UCSF” – all in one sentence.
By some miracle or perhaps a sense of urgency, we got in to see Dr. Meng, with CT scans and biopsy samples, the very next day.
On January 5, 2014, eight friends, my wife, and daughter gathered around me for a healing circle and Indian curry dinner.
The ceremony was led by two wonderful friends. Ramona is a Kundalini Yoga teacher who I’ve been close friends with since 1988. Clare is a magical lady who has performed many rituals to celebrate life with all kinds of people, including my wife’s 60th birthday.
These set the stage for a four part ceremony. The first three stages took place with me lying on the floor and everyone else around me.
The first part was a silent channeling of energy. similar to the 3 Minute Cancer Cure. It was extremely moving for me to feel the love and healing pouring in.
The second part was really beautiful as well. Clare offered each participant a candle to light and invited everyone to offer a prayer or loving kindness blessings to me and the gathered friends.
Each candle was special to me. Many made me cry with tears of joy and I could really feel the love. Others, like Ramona, made me laugh out loud. I felt safe and secure, strong and healthy, and accepted and loved. WOW!
The third part was a kirtan (holy chants) led by Ramona. One of them was waheguru. Waheguru is the Gurmantra or primary Mantra. It refers to the Almighty God; the Creator; the Supreme Soul; the Sustainer; etc.
We chanted together, and I was blessed to be in the middle of everyone.
We concluded the ceremony with the dedication of merit standing around the alter in the photo above. We chanted,
May the merit of our practice benefit all beings and bring peace.
The moment after I came out of recovery on December 17, 2013, Dr. Neuwirth stepped by my bedside. Mala was there.
Dr. Neuwirth said, “I found a 5 mm polyp and removed it. However, I need to do another TURBT (Transurethral Resection of Bladder Tumor), this time in the hospital under anesthesia.”
To prepare for this surgery, I had to see a primary care physician, which I don’t have at this time. Our beloved Dr. Nagar left her practice to become a full-time mother and she had just had a baby. The visit to the doctor required blood work and an EKG. Also, I needed at CT scan.