Don Alejandro

This week and next week will determine the future course of my treatment. The Shipley protocol calls for another TUR around May 6, to determine if there is any cancer in my bladder. The question for Dr. Neuwirth is, “Is my bladder free of cancer?” If the answer is no, then I am to proceed with more chemotherapy and radiation. This phase is known as “consolidation CFI,” where CFI stands for cis-platin, 5FU, and irradiation. If the answer is not no, then Dr. Neuwirth will probably recommend “radical cystectomy,” which I want to avoid.

To help me cope with such a decision, I went to see a Peruvian shaman by the name of Don Alejandro this morning. The session took place in Sebastopol, about 50 miles north of Sausalito. I had in interpreter who translated Don Alejandro’s Spanish into English for me on the fly – as he was speaking. This was a little confusing at first, but I eventually got used to it. I asked him the question on the list in appendix 4.

In the session, Don Alejandro told me that my disease was hereditary. Then I explained to him how my sister died of Leukemia, my mother of an osteosarcoma, my dad of bladder cancer, and how my son survived kidney cancer. Don Alejandro recommended that I continue with the chemotherapy and radiation, if that was required. He felt for sure that I would be cured of cancer, but that it may be a slow process. He said that there would probably be more than one looking into my bladder for cancer. He gave me advice on what to eat: no cold drinks, no red meat, fish in small quantities, and no sea food (my favorite). I should eat steamed or raw vegetables to make up the calories that I need to take in. Cold drinks cause the digestive system to clam up and can cause inflammation in the bladder. I don’t quite understand this, but maybe Michael Broffman can explain it to me. He suggested I take cat’s claw, which I already knew about. I’ll also check this out with Michael Broffman.

He said that I should maintain peace of mind and let all of my problems go. He asked me if I followed any religion, and I naturally told him that I followed Buddhism. He didn’t make a comment about this, but I’m sure it figured into the psychic equation.

Prior to doing his psychic healing, Don Alejandro had me drink a herbal beverage that was quite bitter. I was expecting apple juice! Then I laid down on the bed and he proceeded to heal me according to his methods. He first explored my bladder with his hands and then began a chant in a strange language that could have been mistaken for Hebrew. The chant lasted about five minutes and was very soothing. I noticed that he was sitting with his hands in the prayer position while chanting.

The next thing I knew was that he was laying his hands on my bladder area. After a while, I got the idea to open psychically to him, and I felt him penetrate my defenses. I found myself smiling during the process, and furthermore, I maintained a focus on my breathing with “healthy… free…” Some of his manipulations of my bladder area began to hurt, and I tightened up a bit. Then I realized that this was part of the healing process and I relaxed into it. His work proceeded without further hindrance from me, and soon it was over. He pronounced the healing complete, and, at the same time, ended the session.

I left Sebastopol almost immediately, as I felt that I needed time to integrate what he said and what he did. We came straight home and I did a “mind story” about the healing. My feeling now is that he did major good and I would definitely see him again. By the way, the tape recorder was on “pause,” so I didn’t get any of the conversation. However, the essence of the treatment was the healing, not the words.

In a way, I am now better prepared for a bad answer from Dr. Neuwirth, because Don Alejandro had said that I may have to have my bladder looked into more than once. I’m not sure if he was seeing the follow-up cystoscopic exams, or another TURBT.

In the afternoon, I went to see Dr. Neuwirth, who was quite pleased with how I looked. However, he did not examine me and his scheduler made a point of my having a physical exam with Dr. Belknap before the surgery next week on May 8. He did say that he was willing to have Julie Motz in the operating room with him. He even mentioned that she was in the operating room with a friend of his last week.

For those of you who haven’t heard of Julie Motz, I’ll give you a little run down of what I know from reading the Pacific Sun article from April 23, to April 29, 1997. The article basically states that Julie enters the operating room with the surgeon and does laying on of the hands healing during the surgery. She is the first to use energy healing in the operating room. She works primarily with cancer and heart disease patients. She is giving a lecture at Marin General Hospital on May 8 at 7:00 P. M. I’m trying to use my connection with Leslie Davenport to get to speak with Julie Motz about visiting me during my surgery next week.

Julie Motz called me a little later and said that she would love to work with me, but she can’t do it on May 8. I’m now trying to reschedule my surgery for May 9 to have her there and participate in my healing experience. Maybe I can even get her to write a preface to Yellow Stream!


In the evening, I attended Anna Halprin‘s class. As Anna was receiving an award from her piers, the class was taught by Jordy. She taught a class before, and this one was quite good. The theme of the evening was getting in touch with parts of our bodies that were free and not so free. I identified my knees as being not so free and my buttocks as free. We expressed these parts through writing, movement, working in pairs, and drawing. I drew the above picture. Click on the picture to get a full size version. Then click here to get a rotated version. Quite by accident, the picture works from both orientations. In the first, we see two people lying in the grass with a blue sky above them. In the second, the people are still lying in the grass, but now they are by a lake and the sun is reflecting in the lake. On the back of the picture I wrote,

“Life is made up of free and non-free elements. Aren’t we lucky that there is no permanent self to carry foreword after this life is over? We are free to live our life as we want and discover how to integrate free and non-free elements.”

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Healing Support

April 3, 1997 – Healing Support

Today I went to Cancerport again. The group was once again quite small, so just about everyone got a chance to speak. People asked how I was doing, and I had a long opportunity to explain what was going on with me. Basically, I told them that I had not recovered as quickly from the second chemotherapy and radiation as the first, but mentally and emotionally I was doing quite well. I still have difficult periods with my elimination and a lot of tiredness. I explained how my meditation and imagery work kept my mind focused in my body and away from morbid thoughts. I explained how radical cystectomy was the standard of treatment and that I had decided to take charge of my own case by doing the Shipley method and just how that worked. I told them how I used the web to find out information about my disease and as a means of tracking my healing progress.

Someone then asked me about how I felt about having cancer. I proceed to explain that my father had bladder cancer and died at the age of eighty-six from it, but that he had had a tumor in his bladder for perhaps twenty years. I told them about my son’s metastatic Wilm’s tumor, and that it was another form of urinary track cancer. Then I explained my sister’s death due to Leukemia twenty-eight years ago and my mother’s osteosarcoma. Finally, I mentioned that all my aunts and uncles died from cancer. Thus I felt that I had a genetic disposition towards getting cancer and that the stress brought about by the loss of my job two and one-half years ago probably brought it on.

The discussion turned more towards the alternative treatments that I am using and I spoke about specifically about Michael Broffman and Marty Rossman as partners in my care with the Marin Cancer Institute. I tried to explain that one did not have to believe in meditation or imagery for them to work, even though several people insisted that some level of belief was necessary. So I explained that just a people go to work out at the gym to keep their physical bodies in good shape, they could learn to quiet their mind with a little practice. Wonderfully enough, other people with imagery and/or meditation experience backed up my mini-lesson on meditation, and I felt safe enough to share the insight about “healthy cells grow all by themselves.”

From there, I went to Gail Teehan for another Functional Integration session. It was tremendously healing, once again, and Gail and I shared a lot with each other about our lives and our personal growth. I love working with her because she’s so understanding and has such great hands. I bet she gives a hell of a massage!

Tonight I was supposed to meet my wife at M. C.’s house for dinner and a movie, but I really don’t feel up to going out again. I think yesterday was too much for me and I still exhausted from the long drive to Menlo Park.

Well, “enough for today,” as Bhagwan used to say!

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Bagel and Lox Cream Cheese Spread

March 26, 1997 – Bagel and Lox Cream Cheese Spread

My mother would have been 81 today had she not died of an osteosarcoma almost ten years ago. I have been thinking about all the cancer in our family, and it is really outrageous. Something must be going on here that we have no control over.

Today’s treatment went more quickly than yesterday’s, and lunch was great! All I needed to feel quite good by 6:00 PM was a guided imagery tape of Leslie Davenport and a short nap. My wife and the kids have been very supportive, and I expect to fly through these days quite well.

While the cisplatin was being infused I had another massage with Nora. Because of the IV, and the time limitations, all she had time to do were my shoulders and neck, but it felt good.

In the meantime, I worked on the professional services web page.

I have decided to photograph the drawings I’ve done at Anna Halprin’s classes. One of them was linked into the day before yesterday.

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